Runners and families came together Oct. 25 for a day of activities with the goal of spreading awareness about spinal muscular atrophy. It was the 12th annual Go Leo Race, held at Saluda Shoals Park. Photo by Giovanni Cusatis/Carolina Reporter
What started as a prayer by Adam and Meredith Bugenske for their son Leo, who was born with spinal muscular atrophy, has turned into a cherished community event and a powerful influence on the journey towards inclusion.
The 12th annual Go Leo Race took place on Oct. 25 at Saluda Shoals Park. The event welcomes runners of all abilities to put on costumes and take part in a 5K and a 1 Mile Family Walk.
“Every year, getting to look around and see the families coming out, the kids having a good time, the runners running the race, it’s pretty special,” Adam Bugenske said.
Children with SMA were able to compete in the race with the help of Speed for Need, an organization that provides customized racing wheelchairs for those who need assistance.
Ella Hunt is a 14-year-old with SMA from Indiana. Her mother, Erica Hunt, said the race is truly meaningful for their family.
“It was a win-win for us because we get to be in our community with our SMA people, but also for Ella, who developed a passion for running a few years ago,” Hunt said. “There are a lot of blessings for us to be here today.”
The Bugenske family started Leo’s Pride Foundation as a way to give their son and other people with disabilities a chance to be included in outdoor activities. In addition to the race, the family created Leo’s Landing at Saluda Shoals Park, which features playground equipment that’s inclusive to everyone.
Caleb Mattox, an uncle of Leo, said the work done by the family is valuable in providing opportunities for all members of the community.
“It gives everyone a chance to see what’s possible,” Mattox said. “He would go to a normal playground, and Leo couldn’t do anything, so (his father) built this. It’s amazing.”
Hannah Andreychik and her 10-year-old daughter Jade have run the race for the past few years.
“My favorite part is just getting a chance to run with her,” Hannah said.
“My favorite part is running fast,” Jade said.
Adam Bugenke has become an influential face in inclusive projects in the community. He’s now working with Lake Murray Elementary School to help build a sensory room for the school’s special needs students.
“The nice thing about how it has grown is that you can see people believe in what we’re trying to do with inclusion,” Bugenske said. “It’s confirmation that we’re part of something special and building something for the community.”
Go Leo’s finish line is filled with people cheering on racers, rows of bikers revving the engines of their motorcycles and cheerleaders from local high schools chanting. Erica Hunt, who stood at the finish line cheering on every runner, said it’s important to support each other.
“It takes a lot to get here, but at the end of the day, it’s all about creating moments,” Hunt said. “I’m sure we will be back next year.”
Hannah Andreychik and her ten-year-old daughter Jade pose after the race. Hannah placed third in her age group and Jade placed sixth in the 10-11 age group. Photo by: Giovanni Cusatis/Carolina Reporter
Caleb Mattox (left) and Troy Locher were one of the costume contest winners at the race. Photo by: Giovanni Cusatis/Carolina Reporter
Dan Hunt pushes his daughter Ella in the race. This was the third race that Ella has competed in. Photo by: Giovanni Cusatis/Carolina Reporter




